Rachel Pyne, a 27-year-old photographer from Merrillville, IN has battled an extraordinary number of challenges in the last few years, including a rare and debilitating condition that allowed her to hear every move her body made, from the the beating of her heart, to the movement of her eyes.
In a recent interview, Pyne told ABC News that she’d often spend days in bed well beyond noon, “unable to enjoy simple pleasures like watching TV or listening to music because they caused her excruciating pain.” Yet, few could sympathize with her condition, she said.
“I could hear my neck muscles moving, like different things inside my body and when tell people that, they are like, ‘you’re crazy,’”
After consulting with several specialists, she was eventually diagnosed with a rare condition called Superior Semicircular Canal Dehiscence, a condition in which vestibular symptoms are elicited by sound-induced pressure.
Surgeries for SSCD used to require a significant amount of recovery and heavy scarring. Thankfully, medical advancements in recent years have allowed surgeons to complete the procedure without significant invasion.
“When I woke up from surgery I knew right off the bat that I was better and I had no more dizziness and I was talking to the nurse right when I woke up and I was ready to get up and go somewhere,” she told the station.
She’s now recovering with no issues at all. Watch her story in the NBC video below:
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